Why do I do this to myself? I really thought about that yesterday and today. I do it to honor the children. I do it to remind myself that our family is very lucky. I do it because if we weren't I'd be mad as hell and would be doing just what those mommies are doing. I'd want everyone to know about Simon to raise awareness. I'd want to make sure he didn't die in vain. I'd want everyone to read about him.
I'm really feeling the need to do something for the hospital or families dealing with this now. There is one organization that lets you adopt a family for Christmas. I think I'd like to do that. I want to do something beautiful in Simon's name. In a bout of insomnia the other night I happened upon two other moms with kids who have/had clear cell also. One is going through treatment now. It takes me back to a year ago. And speaking of which, here is where we were a year ago. He doesn't even look like the same boy. I'm so proud of how far he's come. He had scans last week (bone and CT) and all came out clear. I'm so happy.