Friday, September 28, 2012

September


September is Childhood Cancer Awareness Month.  I've thought about it more this year than last.  I guess last year I was too busy living it.  What's really brought it home for me this year is reading the daily postings of two mothers with pre-schoolers who lost their battle.  Each one is posting a bit each day throughout the month.  I tend to read about Aidan in the morning and Donna in the evening.  It hits home that not all kids are as lucky as my dear Simon.  I've delighted in their little spirits and my heart has broken with their mothers'.  One mother had to sign a DNR for her son.  The other died a little each time her daughter told her what she'd be doing when she turned 8 or 9, her mother knowing she wouldn't live to see 5.  I've actually been dreading the end of the month for I know what I shall read.  My heart has been heavy today because of what I've read.  I've cried buckets of tears.  I fear I shall also tomorrow.

Why do I do this to myself?  I really thought about that yesterday and today.  I do it to honor the children.  I do it to remind myself that our family is very lucky.  I do it because if we weren't I'd be mad as hell and would be doing just what those mommies are doing.  I'd want everyone to know about Simon to raise awareness.  I'd want to make sure he didn't die in vain.  I'd want everyone to read about him. 


I'm really feeling the need to do something for the hospital or families dealing with this now.  There is one organization that lets you adopt a family for Christmas.  I think I'd like to do that.  I want to do something beautiful in Simon's name.  In a bout of insomnia the other night I happened upon two other moms with kids who have/had clear cell also.  One is going through treatment now.  It takes me back to a year ago.  And speaking of which, here is where we were a year ago.  He doesn't even look like the same boy.  I'm so proud of how far he's come.  He had scans last week (bone and CT) and all came out clear.  I'm so happy. 

Thursday, September 13, 2012

Friend

We have a new woman watching Simon now.  She's a lady from church with 5 or so kids of her own.  One is a 3 year old boy.  He just started going there yesterday, but by all accounts it's going swimmingly.  Word on the street is he's been behaving himself and even got a nap today.  Her elementary school daughters came home and loved doting on him.  He didn't even care when Daddy left him there.

This morning after I left I'm told he grabbed his bag and went to the front door.  He kept saying "I friend!"  He was so anxious to go see his friend.  He's been so isolated for so long he hasn't really been around kids except his cousins.  It's so awesome and sweet to know he now has a friend.  It kinda makes me verklempt.  Apparently today when he went over there his pal came to the door and the two of them took off to go play.  It's something so small but it still makes me so proud of him.

L for Love


The picture above is from Dodgeball.  Blaine and I saw this on our honeymoon and it was awesome.  It was us in movie form.  It was nonsense.  It had a filmstrip.  It had a water-skiing squirrel.  It had everyone in it ever.  It had ESPN 8 - The Ocho!  In this picture the wife is making the loser sign and her husband takes it to mean "L for love."  Blaine and I picked it up and do it all the time, especially when saying goodbye.

Lately Simon has taken to doing it too.  He hasn't quite got it down yet.  He kind of points to the top of his head with his fingers all spread out.  But it's the cutest thing ever.  He can't yet say "I love you" but he can do this.  Sadly, someday he's going to grow up and realize how odd his parents are.  Someday he'll probably figure out that it means something else to the rest of the world.